October- Day 7

Happy Day 7!!! I have GOOD news! we are now on twitter so if you have a twitter follow braceletsforett and recieve tweets everytime the blog is updated! we are also on facebook under the name Braceletsfor Rett so add us as a friend or like our facebook page (Bracelets for Rett Syndrome)!

And now for the Rett fact of the day!

Did you know that along with being trapped Rett girls also deal with medical issues? They go through things worse than anyone should have to let alone an innocent little girl like seizures, scoliosis, feeding tubes, and much more. Everyday i go on facebook and learn of a little girl in the hospital for days having an EEG to find out if she has seizures or unexplained "Rett tremors".  I hear of eight year old girls having 12 hour surgeries to fix the painful curve in her back. This post is personal for me because my littlest cousin has seizures.  Its horrible to watch. These seizures make me want the cure even more.

Please help stop the maddness because its not fair to these little girls.

Help by spreading the word. The more aware people become, the more donations come in.

Paint your toes purple

share us on facebook

Buy your very own Bracelet for Rett!

October- Day 6

Happy Friday Everyone! Its Day 6!!! only 9 Days left! October is going by SO fast

GOOD NEWS!! we gotta twitter! follow Braceletsforett and show your support!

Did you know that Rett Syndrome is an autism spectrum disorder?  It is considered the most severe form of autsim on the scale along with the most disabling. Usually children with typical autsim can walk, talk, take care of themselves, etc..but with Rett Syndrome girls are limited. Sometimes a girl with Rett Syndrome will be diagnosed with autism before they know of Rett Syndrome.

A cure for Rett Syndrome could essentially lead to a cure for autism also so consider donating a facebook status for Rett and youd be helping cure autsim also. Please help because THE CURE, IS NEAR!

October- Day 5

Happy Thursday everyone!!! Today is day 5!

Did you know that at birth Rett Syndrome is completely undetected? Imagine you have a baby girl who is happy and healthy. You develope dreams for her future and think about what shell be like when she grows up. Will she be crazy and talkative or shy? Your dreams start becoming real as she learns to walk and crawl. She says "I love you mamma" and no one reads your little girl like you do. Now imagine that you wake up one morning and this beautiful little girl seems to have hit a wall. She stares up from her crib, hands in her mouth, and it seems like your little two year old hurricane has gone back to being a newborn in a toddler body. After months of scared testing you finally find the answer and the outlook isnt so good. Your crazy little girl has Rett Syndrome. She may never say she loves you again. Shell laugh at nothing, and cry for hours for no reason other than frustration of being trapped in her own body.

Please help find the cure for Rett Syndrome so that the little girls that are trapped will be free. So that this doesnt happen to anyone elses little girls. 

Even the smallest donations help. Paint your toes purple, share this blog, buy a bracelet, visit girlpower2cure.org. ANYTHING.

October- Day 3/4

HEYYY! im SOO sorry i didnt post yesterday. Essays and Spanish and Chem galore! woo. jk. ANYWAYS, so to make up for it ill post two facts today.

1.
    Did you know that 20 girls a day come into this world, perfect and healthy. Little does anyone know that by age three those little girls will be stronger than many. Theyll gain skills rapidly, learning to walk, talk, all those things. and then rapidly lose those skills. twenty little girls a day.

2.
   Did you know that Rett Syndrome is genetic disorder linked to the X chromosome? Boys have an XY chromosmes so if  aboy was to have Rett it would be rare, usually these cases end up miscarriage or still birth. HOWEVER i have heard of a little boy named Andrew who has Rett Syndrome.  Read up on little Andrew HERE !

Please help find our cure. Shes waiting patiently to be free.

October-Day 2

Today is Day Two of the fifteen day campaign but first  i want to share a song that reminds me of my little cousin Emma. Its called Lighthouse by Hope. its a fabulous song! to listen click here ! or to just read the lyrics click here.

and now for the Rett Syndrome fact of the day!

Did you know that in 2007 Rett Syndrome was reversed in mice?

On February 9th, 2007 Dr. Adrian Bird reversed Rett Syndrome in both male and female mice!

Can you believe that?! Not only that but the cure for Rett Syndrome could also lead to cures for other diseases such as autism, parkinsons, cerebral palsy, and MANY more!

So help us find the cure because not only are you helping people with Rett Syndrome but people with numerous other diseases!

help by: Buying a bracelet! Sharing this blog! liking Girl Power 2 Cure on facebook! friending Braceletsfor Rett on facebook! painting your toenails purple! EVEN just telling a friend about Rett Syndrome!

And think of her while doing it!

October- Day1

Did you know that October is Rett Syndrome awarness month? Well if you didnt, you do now! I have decided that for the next 15 days i will post one new fact about Rett Syndrome.

Day One-

Did you know that the most severe handicap in Rett Syndrome is apraxia, which means the will to move is present but there is an inability to carry through with the movement. Imagine living a lifetime with severe apraxia. Imagine being trapped in your own body. Imagine wanting to go somewhere but not being able to move there. This. is Rett Syndrome.

Did you know that YOU can help find the cure. All you have to do is buy a bracelet, donate a facebook status, even clicking subscribe on this blog, because ANYTHING helps!

The motto of the IRSF (international Rett Syndrome Foundation) is "Your help, is our hope"

Do it for her.

For REALZ!

Hey guys!! so this post is kinda like boom. i was gonna try and run this Bracelets for Rett anonymously but its kinda really hard so i think im going to have to reveal myself. here we go. Hello! My name is Rachel! Im a 15 year old girl from a teeny town called Saranac Lake. I started bracelets for rett in honor of my littest cousin Emma (to read emmys story go here --> http://girls.girlpower2cure.org/emma).

five Random facts about me:

• i was born March 24, 1996
• i can play the piano and guitar (also own a uekelale)
• i tend to relate every event of my life to a song
• im not really a fan of shopping. its frustrating.
• my theme song is Change by Taylor Swift

im sad that this cant be anonymous but as the orders come in i realize how difficult that would be so TA DA!!

Thanks for visiting this blog!! by the way check us out on Facebook under the name of Braceletsfor Rett (thanks SOO much facebook regulations. jk. mean) or like our page which is under the name of Bracelets For Rett Syndrome!

thanks again!!