HELP!

I need a favor, this doesn't really have to do with the Bracelets for Rett organization but i need YOUR help! As family and friends of girls and boys with Rett Syndrome the term "going down without a fight." means SO much to you, right? We'll that is exactly what we are doing here. You see my name is Rachel,  my sisters Kelly, and my best friend is Nathalie. Last year we held a spaghetti dinner for Emma and Rett Syndrome during the spring. This year we were trying to make it an annual event but at a different place. The place we want to have it would be asking for a hundred dollar rent. To pay for this hundred dollar rent we would want to hold a dance in the town's middle school Cafeteria  for the middle schoolers to come to and have a fun night. We would keep a hundred of the proceeds and the rest would go to Girl Power 2 Cure for OUR CURE! 


We went to the middle school principal to ask permission, but. We were denied. We fully understand that it isnt her fault and shes simply telling us the rules. no dances not school related and everything. but really. This little girl attends the elementary school just down the stairs. In 4 short years she will be going to this same school thats denying us the right to HELP HER GET HER VOICE! is that not school related?  We simply want aloud the use of the cafeteria for one friday night. 


We cant get what we need without you though. we are only three teenagers. Without your help we are being deprived the ability to help this little girl and millions like her. We deserve to have our voice be heard while trying to free hers.


How can you help? Comment, share, email braceletsforrett@yahoo.com. ANYTHING. but without youre help we wont recieve the tools we need. and trust me. we arent going down without a fight. 


Nathalie says:


"Please take the time to read this. My name is Nathalie and I'm 13 years old. I am in 8th grade at the Saranac Lake Middle School. I'm not going to talk to you about that though. This letter is about Rett Syndrome. Rett Syndrome is a form of autism that affects girls. It deprives them of walking, talking, and using their hands. Imagine duct tape over your mouth, glueing your hands together, and having both of your legs broken. Try and imagine how aggravated you would feel. On top of this, you would have seizures daily and your spine wouldn't be straight. You wouldn't be able to say if you were hungry, where you wanted to go, or if you were in pain or not. Little girls with Rett Syndrome are completely trapped. 

Kelly and Rachel's little cousin has this awful disease. There's no cure. Poor little Emma goes day by day, trapped in a world where people think she's stupid when she's really more intelligent than practically any other kindergartner out there. Today, Kelly and I went to our principal to ask if we could hold a dance. All of our money from the dance would be donated to the non-profit organization girlpower2cure. Much to our dismay, we were told we are not allowed to have a dance to raise money for research for a cure. I understand this is the school cafeteria we're talking about, but we SERIOUSLY can't use it for a dance? I also understand there are standards for dances, like they have to be school-related. Emma ATTENDS our school! I don't see how that is not school related. All we want to do is raise money for this precious five year old, yet we're not allowed to. I also understand this is not the principals fault. All she is doing is telling us the rules, and doing her job. I don't blame her one bit.
If your little daughter was born with this chromosome mutation you would do everything you can too. Seeing them suffer is not right. If you see this, we want to have a dance. And if you want to learn more about Rett and Emma, go to girlpower2cure.org
Do it for Em."