To 2012!

I was talking to a friend yesterday and we were talking about 'normal.' What is normal? well, its you're everyday life, the things you do, feel, and say, on a regular basis. normal is NOT something that blends in with everyone else. Normal is not a fantasy world on TV, its YOU.


You're probably wondering why i'm talking about 'normal' and what it has to do with Rett Syndrome, but in a Rett syndrome family its easy to feel abnormal. Trust me, when you're 15 and know all about chromosomes and seizures and special needs galore its really easy to feel out of place in a society obsessed with obtaining perfection.


I should care about hair, makeup, boys, surviving high-school  and popularity, but instead i am here writing to you  about the abnormalness of my normal situation. the fact that i care about Rett more than i care about what people think of me makes me stick out at school like a sore thumb. i'm imediatly labeled abnormal because i don't fit in. but i bet if you looked at the lives of those other kids you would see that they are similar because they don't have the perfect life either. 


NO ONE is abnormal because everyones normal, is normal.


So in 2012 i will help achieve raising awareness to the Syndrome that makes me stand out. i'm going to bring it into EVERYONE'S normal until someday its cured. i'm going to make it so when i type "Rett" into the computer there is no little red line saying i misspelled something. and you can help by simply buying a four dollar bracelet. email braceletsforrett@yahoo.com with your two favorite colors and well get back to you! 2012 is YEAR of the CURE!


"Everybody knows there is no such thing as normal. There is no black-and-white definition of normal. Normal is subjective. There's only a messy, inconsistent, silly, hopeful version of how we feel most at home in our lives." -Tori Spelling