Wednesday, December 28, 2011

Christmas: Dalton style

theres a saying ive heard out on the rett net. it goes something like this "With Rett Syndrome, nothing is ever normal" and that includes Christmas. Every year we spend Christmas Eve at my grandparents all together discussing where Santa is, the giant nameless present under the tree, sledding, all those 'typical' things but in an untypical way. Of course its always done with lots of giggles:
cause what little girl doesnt like an early present?  Now if only she could tell us what she thinks with words.

we spent like 2 hours trying to get some good family pictures resulting in some good ones:
now i just wish she could make one of those crazy faces. 

but in the end Rett Syndrome didnt get us, in fact Em actually opened one of her own presents!

but theres still the lingering thoughts of the untypicalness of our Christmas celebrations. and i hope one day we can celebrate Christmas without worrying about meds or seizures. and with your help, one day we WILL! there are tons of girls around the world suffering from Rett Syndrome. Tons of families going through the same thing. with the purchase of a Bracelet from bracelets for rett you could help get a 'normal' Christmas for millions of familes. just email braceletsforrett@yahoo.com to get your own! 


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