but its next year and were still ripping the paper for her, the movements are still uncontrolable, and there is no cure.
so when is the last year? when do we get the perfect christmas? the one without the special chair, the one she gets to do things herself. why cant we have that?
Because of Rett Syndrome.
But next christmas there will be. We will have our cure. With YOUR help.all it takes is ONE bracelet for only FOUR dollars. so order today because research is getting closer and closer to the CURE for Rett Syndrome.
next christmas shell open those presents, shell knock ornaments off the tree on PURPOSE instead of involentarily, next christmas there will be a cure.but its next year and im still waiting for her to walk over and climb in my lap, still waiting on the love, still watching those seizures.
Rachel, I would say something like "I'd drink to that yeah yeah" right now but I feel BFR is not a place to do that. but you're right. next year were all gonna be so happy, because all our wishing, praying, and fundraising payed off. (and blogging!!!) you're so right though Rach. next year you'll get a normal Christmas and I will receive pictures via text of all four of you building snow men. it's gonna get better. merry Christmas I love you girlyy!! -nat
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