Monday, October 10, 2011

Bracelets for Rett Syndrome

Hi! Welcome to the official website of Bracelets for Rett! Here we sell thread bracelets and all the proceeds go to Rett Syndrome research!

What is Rett Syndrome? Well, I'm glad youve asked!(:

Rett Syndrome is:

  • Debilitating neurological (movement) disorder that predominantly affects females.
  • Baby girls are born "normal" but begin to lose acquired skills between the ages of 1-3 years old. 
  • Caused by a single gene mutation that leads to underproduction of an important brain protein.
  • The most severe form of autism.
  • The leading genetic cause of severe impairment in girls - most cannot speak, walk or use their hands.
  • Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought.
  • As prevalent as Cystic Fibrosis, ALS and Huntington's.
  • Another little girl is born with Rett Syndrome every 90 minutes.
  • Rett Syndrome is a potentially REVERSIBLE disorder. Research has proven once protein levels are back to normal levels, symptoms subside.
Imagine you are the parent of a baby girl. When she is born, the doctor tells you she is normal and healthy. You watch her start to become a little person. She smiles at you and your family when she’s six weeks old. She picks things up with her thumb and first finger when she is seven months old. At 10 months, she is rolling and crawling her way into everything. You take pictures of her first birthday, where she is sitting up without your help and smiling at the camera. She can even say her own version of “cheese.”

Now imagine that same daughter at age two. She can no longer sit up and doesn’t grasp with her fingers. She starts having seizures. By the time she’s three, she is always grinding her teeth and stops talking. When she turns six, her spine starts to curve, which limits how well she can move. She screams and laughs during the night for no reason, but doesn’t respond to or interact with others. By her eighth birthday, she can’t move on her own and can’t talk.

This is Rett Syndrome.

October is Rett Syndrome awareness month. You can help cure this monster simply by buying a bracelet.

If you are interested in a bracelet contact me at braceletsforrett@yahoo.com with your two favorite colors and the size of your wrist (small, medium, or large).

The smallest donation counts!

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