Did you know that Rett girls cant use there hands much? Rett Syndrome is classified as a movement disorder. This means the muscles are affected greatly. The muscles of a girl with Rett Syndrome are constantly either in there mouth, clapping, or wringing (click here to see an example).
This repeative movement often impairs them from using their hands purposfully. Before we knew Emma would spend her time with her hands in her mouth we tried learning sing language. I learned random words like bird, pasta, sweep, more, and whale. but now em cant use her hands. That doesnt stop us from loving her though.
I have heard of one girl named Karly who is able to communicate using a keyboard. Its SOOO amazing. Check out Karlys girl power page HERE or read some of her blog HERE!
Sorry for the short post tonight but its been a long day!
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