October- Day 10

Guess What!? Theres only 6 days left of learning one new Rett fact a day until we go back to regular posting! Ive come tonight to ask a HUGE favor, PLEASE PLEASE PLEASE share this link with your friends/family. The only way there will ever be a cure is if the WORLD knows of Rett Syndrome. All i ask is for a simple facebook post/tweet/conversation. ANYTHING.

I know i touched on this subject last night but i want to go more in depth into one of the four stages of Rett Syndrome.

Did you know that the regression stage hits almost immediatly? One day your sweet girl crawls. She climbs on chairs. She runs around. You wish for a break. You want her to stay out of trouble. You want to not have to keep an eye on her every second. But then Rett Syndrome comes along. She stares at the ceiling. Crys at nothing. Barely walks anymore. Now you want her seizures to stay away. You want a break from hospitals. You want her to run up the slide. You wish for her to get in trouble.

One day your little girl wont be quiet. Shes Always screaming in your ear. You cant do something without her asking questions. All you want is a moment of peace and quiet. You cant wait for nap time because then the house is silent. Until rett Syndrome hits. Soon you miss her screaming. You miss answering questions about everything. Your house is to quiet. You dread naptime for fear she wont wake up.

I remember when my littlest cousin was born. We were going to teach her all sorts of things. Wed share our barbies. Paint each others nails. Have bike races. Play with the doll house. And then Rett Syndrome. Now at family get togethers we sit and talk to her. We encourage her to hit the button. We long for those lost dreams.

PLEASE help find the cure for Rett Syndrome. Its not just a dissease. Its a theif. It steals dreams and replaces them with hospital visits and therapy. Please help find the cure so no family has to know the pain of watching their little girls abilities slip away.